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Federal Register of Persons with Individual Diseases and/or Conditions

Product
Developers: Ministry of Health of the Russian Federation (Ministry of Health)
Date of the premiere of the system: September 2023
Branches: Pharmaceuticals, Medicine, Healthcare

2025: Register Launch

On June 3, 2025, it became known that it Ministry of Health Russia would launch a federal register of patients with certain diseases, information on the outcomes of pregnancy and childbirth to assess the incidence rates and the impact of medical organizations on changing medical and demographic indicators. The new system will also be used to monitor preferential drug provision.

According to Medvestnik, the department will begin to maintain a federal register from March 1, 2026. According to the decree of the Russian government No. 822 of May 31, 2025, data will be collected electronically. The new platform will become part of the Unified State Health Information System (Uniform State Health Information System).

Ministry of Health announced the launch of a federal patient register to assess the impact of diseases on the economy and demography

The register is designed to collect data on the activities of medical organizations, the impact of morbidity rates on the change in medical and demographic indicators, financial and economic planning of medical care and programs of preferential drug provision. Prior to this, similar statistics were collected using federal statistical surveillance forms and partly from health care bills.

The register will include information about patients in 12 groups of diagnoses and conditions:

  • malignant neoplasms;
  • neoplasms in situ;
  • diabetes mellitus;
  • mental and behavioral disorders;
  • coronary heart disease, including those with abnormal rhythm and conduction;
  • the presence of cardiac and vascular implants and transplants;
  • cardiomyopathy;
  • heart failure;
  • acute cerebrovascular disorders;
  • liver disease, including alcoholic etiology;
  • pregnancy, childbirth and postpartum;
  • chronic obstructive pulmonary disease.

Information providers can be the Ministry of Health,, Compulsory Health Insurance Fund, Social Fund regional ministries, medical and pharmaceutical organizations, as well as the operator of the drug movement monitoring system. Access to part of the information about patients will have, and to MINISTRY OF INTERNAL AFFAIRS impersonal statistical information - and. Rosstat Roszdravnadzor[1]

2023: Creating a Register

Ministry of Health The Russian Federation creates a register of patients with common diseases. This became known in September 2023 from the draft government decree, which was developed by the department.

It follows from the document that we are talking about the formation of the Federal Register of persons with certain diseases and (or) conditions. The database will include personal data of a person, information about his diseases, medical care provided, including which organizations and health workers provide it, as well as "on the provision of medicines, medical devices and specialized medical food products (including information on prescribing and vacation)."

The Ministry of Health will form the Federal Register of Persons with Certain Diseases and (or) Conditions

The press service of the Ministry of Health clarified that the register is an information resource that allows you to quickly exchange the information necessary "to provide medical care to patients for the most common groups of diseases, between various medical organizations" (quoted by TASS). The register will be integrated with other information systems of the Ministry of Health, the Federal Compulsory Health Insurance Fund and other departments.

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The register will use the information already available in these systems, which will ensure its work without complicating the work and additional actions of medical workers, as well as a high degree of information security in the contour of the unified state information system in the healthcare sector, the Ministry of Health said in a statement.
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It is noted that the approval of the new register will not require additional expenses of the federal and regional budgets, extrabudgetary funds. The resource provision of the measures necessary for its implementation is laid down in the departmental program of digital transformation of the Ministry of Health for 2023-2025.

Government of the Russian Federation Draft Resolution On Approval of the Rules for Maintaining the Federal Register of Persons with Certain Diseases and (or) Conditions and on Amending Certain Acts of the Government of the Russian Federation