| Developers: | Ministry of Health of the Russian Federation (Ministry of Health) |
| Date of the premiere of the system: | September 2023 |
| Branches: | Pharmaceuticals, Medicine, Healthcare |
Content |
2026: Natalia Kasperskaya - against a single register of diseases. Letters to lawmakers are being prepared
On February 16, 2026, Natalya Kasperskaya, Chairman of the Board of ARPP Fatherland Software, announced in her Telegram channel the upcoming letters to the Federation Council regarding the introduction of a federal register of persons with certain diseases in Russia. The register is planned to be launched from March 1, and when a Russian citizen applies to a doctor for one of 12 diseases (conditions), including pregnancy, information about this citizen with his personal data and a description of the condition will appear in this resource.
The initiative to create such a register caused mixed reactions in society. Natalya Kasperskaya noted in a post about the upcoming letters: elections to the Federation Council and the State Duma are coming in the fall, and expressed the hope that lawmakers will listen to the "voice of the people."
The
Key concerns, which she has previously pointed out, are related to the risks of leaks of extremely sensitive data. And with the participation of readers of her Telegram channel, Natalya Kasperskaya collected a much wider range of risks that are planned to be affected in letters to the Federation Council. The post in the channel collected more than 550 comments, including, among other things, fears of an extremely dystopian nature[1].
Many of them are associated precisely with information security and the potential consequences of leaks. Interest from both domestic and foreign fraudsters in the register, in which you can see the lowdown of a person, is predictable. Potentially, such data can be used to enrich with the use of diagnoses in various fraudulent schemes. It is possible that the data from such a register will seem attractive, including to "black" realtors.
A separate group of concerns is associated with the risks of using data from the registry in order to apply some restrictions to a person. Some, for example, fear that getting into it with certain diagnoses can negatively affect employment, especially when it comes to psychiatric diagnoses.
In addition, human or technical errors are not excluded, due to which diagnoses that a particular person does not actually have could appear in the registry. In the comments to the post, the respondents also point to the potential risk of abuse of the right to access the register and including in it from malicious purposes records of diseases that a person does not have.
And, finally, some respondents question the legitimacy of such a collection of data on human health as such under current legislation, including laws on medical secrecy and the protection of personal data. In her Telegram channel earlier, Natalya Kasperskaya also conducted a more general survey regarding the attitude to the register. It was attended by 32 thousand people, of which 92% made a choice in favor of the inadmissibility of the register, believing that it violates their right to privacy and medical secrecy.
In another survey in her own channel with more than 24 thousand votes on the topic of further actions if a person has one of the conditions to be included in the register, 53% of respondents chose the option with independent treatment and another 38% - with the transition to a private clinic.
2025
Register development. Project budget - 676 million rubles
Ministry of Health Russia initiated the creation of a federal register of persons with certain diseases within the framework of the Unified state Health Information System with a budget of ₽676 million to monitor the provision of specialized and high-tech medical care to patients with chronic pathologies. The new subsystem will combine data on citizens suffering, malignant neoplasms diabetes mellitus mental disorders, cardiovascular diseases and other socially significant diseases to improve the effectiveness of health care and resource planning. This was reported by the department on August 4, 2025.
According to CNews, work on the creation of the subsystem "Federal Register of Persons with Certain Diseases" should be completed by the end of February 2026 in accordance with the terms of reference posted on the public procurement portal.
The information system will accumulate personal data of patients, including last name, first name, patronymic, date of diagnosis, information about hospitalizations and outpatient treatment, prescribed drugs, results of laboratory and instrumental studies. As conceived by the initiators of the project, centralized storage of medical information should allow optimizing the processes of interaction between different medical institutions.
The technical task provides for the solution of the tasks of accumulation, processing, storage, updating, generalization and systematization of information about patients with chronic diseases. The system will ensure the possibility of assessing the impact of morbidity indicators and the activities of medical organizations on the change in medical and demographic indicators of the population.
The subsystem structure includes several interconnected components. The register of citizens entitled to provide medicines and medical devices will become the basis for coordinating preferential drug provision.[2]
Work on creating a register
On June 3, 2025, it became known that it Ministry of Health Russia would launch a federal register of patients with certain diseases, information on the outcomes of pregnancy and childbirth to assess the incidence rates and the impact of medical organizations on changing medical and demographic indicators. The new system will also be used to monitor preferential drug provision.
According to Medvestnik, the department will begin to maintain a federal register from March 1, 2026. According to the decree of the Russian government No. 822 of May 31, 2025, data will be collected electronically. The new platform will become part of the Unified State Health Information System (Uniform State Health Information System).
The register is designed to collect data on the activities of medical organizations, the impact of morbidity rates on the change in medical and demographic indicators, financial and economic planning of medical care and programs of preferential drug provision. Prior to this, similar statistics were collected using federal statistical surveillance forms and partly from health care bills.
The register will include information about patients in 12 groups of diagnoses and conditions:
- malignant neoplasms;
- neoplasms in situ;
- diabetes mellitus;
- mental and behavioral disorders;
- coronary heart disease, including those with abnormal rhythm and conduction;
- the presence of cardiac and vascular implants and transplants;
- cardiomyopathy;
- heart failure;
- acute cerebrovascular disorders;
- liver disease, including alcoholic etiology;
- pregnancy, childbirth and postpartum;
- chronic obstructive pulmonary disease.
Information providers can be the Ministry of Health,, Compulsory Health Insurance Fund, Social Fund regional ministries, medical and pharmaceutical organizations, as well as the operator of the drug movement monitoring system. Access to part of the information about patients will have, and to MINISTRY OF INTERNAL AFFAIRS impersonal statistical information - and. Rosstat Roszdravnadzor[3]
2023: Creating a Register
Ministry of Health The Russian Federation creates a register of patients with common diseases. This became known in September 2023 from the draft government decree, which was developed by the department.
It follows from the document that we are talking about the formation of the Federal Register of persons with certain diseases and (or) conditions. The database will include personal data of a person, information about his diseases, medical care provided, including which organizations and health workers provide it, as well as "on the provision of medicines, medical devices and specialized medical food products (including information on prescribing and vacation)."
The press service of the Ministry of Health clarified that the register is an information resource that allows you to quickly exchange the information necessary "to provide medical care to patients for the most common groups of diseases, between various medical organizations" (quoted by TASS). The register will be integrated with other information systems of the Ministry of Health, the Federal Compulsory Health Insurance Fund and other departments.
 | The register will use the information already available in these systems, which will ensure its work without complicating the work and additional actions of medical workers, as well as a high degree of information security in the contour of the unified state information system in the healthcare sector, the Ministry of Health said in a statement. |  |
It is noted that the approval of the new register will not require additional expenses of the federal and regional budgets, extrabudgetary funds. The resource provision of the measures necessary for its implementation is laid down in the departmental program of digital transformation of the Ministry of Health for 2023-2025.
| The site content is translated by machine translation software powered by PROMT. The machine-translated articles are not always perfect and may contain errors in vocabulary, syntax or grammar. Read original article If you find inaccuracies or errors in the results of machine translation, please write to editor@tadviser.ru. We will make every effort to correct them as soon as possible. |